Chronic Illness Advocacy · Education · Community
Bendy BethC
A public advocacy and education brand creating content about life with Ehlers-Danlos Syndrome, POTS, Mast Cell Activation Syndrome, and the reality of living in a body medicine doesn’t have a map for.
About the Brand
What Bendy BethC does
Bendy BethC is a chronic illness creator brand operated as a small independent business. We publish short-form video, carousel explainers, and written posts on TikTok, Instagram, and Facebook under the handle @bendybethc.
Our audience is people living with — or caregiving for — Ehlers-Danlos Syndrome, POTS, MCAS, ADHD, autism, and other invisible, multi-system conditions. Our content goal is education, validation, and reducing the time it takes someone to get a correct diagnosis.
Everything published on these accounts is produced, fact-checked, and approved by the brand. Nothing is posted automatically without review.
About the App
The Content Agent
The Bendy BethC Content Agent is the brand’s content management and analytics dashboard. It plans the publishing calendar, drafts posts for review, and analyzes how published content is performing on the brand’s own social accounts.
The app uses the TikTok for Developers API and the Meta Graph API to read public metrics and video metadata for the accounts the brand owns and operates. It does not read, collect, or store data from any account it does not own.
The authenticated dashboard is restricted to the authorized creator account owner. If you are a TikTok or Meta reviewer verifying compliance, you can find all required documentation below.
For Platform Reviewers
TikTok & Meta API Compliance
TikTok API scopes used
user.info.basic— read the authorizing brand account’s public profilevideo.list— read the authorizing brand account’s own published videos for analytics and on-site display
We do not request permissions to access any account other than the one that explicitly authorizes the app.
Where to find everything
- Privacy Policy — how TikTok data is handled, stored, and deleted
- Terms of Service — acceptable use, disclaimers, governing terms
- Data Deletion — how to request deletion of any data we hold
- TikTok Showcase — live display of @bendybethc posts on this site
What We Publish
Our content pillars
Medical Monday
Weekly visual education on a single condition — Ehlers-Danlos, POTS, MCAS, and how they overlap.
Truth Tuesday
Hard truths about the diagnostic maze, medical gaslighting, and what it actually takes to be believed.
Trending Thursday
Awareness-calendar posts aligned to major chronic illness and disability observances.
Questions?
Platform reviewers, press, or audience members — you can reach the brand at bendybethc@gmail.com.